Your Impact
When you support MDA, you ensure that our mission is carried out in the following key areas:
Science & Research
MDA is dedicated to providing access to life-changing treatments for people living with neuromuscular diseases (NMDs) through research and technology. MDA has invested over $125M in the development of gene therapy for NMDs over the past 20 years. Breakthroughs in gene therapy have led to clinical trials that have provided the miracle of more time for patients like Connor Curran and his family.
Access to Care
At MDA, we are committed to ensuring that the MDA Care Center Network operates with a multidisciplinary approach which brings together the expertise of professionals from a wide range of disciplines in one location to provide coordinated, patient-centered care.
What is equally important is that the MDA Care Center team is connected to the latest clinical trials and FDA-approved treatments.
Recreation Programs
MDA Summer Camp is a magical place where anything is possible — from swimming to zip-lining, to sports and games, to dancing under a disco ball, all while gaining valuable life skills.
MDA strives for every camp session to provide a true camp experience, which includes connecting with the outdoors, developing life skills, building lifelong friendships, and providing opportunities to try new things. When kids attend MDA Summer Camp they gain independence as they spend time away from home, learn to accept personal care from someone other that their parents, develop greater self-esteem and confidence, and spend times with other kids who understand what it’s like to live with a neuromuscular disease.
Become an MDA Insider
Do you want to receive exclusive email updates directly from MDA?
Get direct and instant access to a member of our team, who will share information about your impact, project outcomes, and stories from the field.
Public Policy & Advocacy
MDA’s Advocacy team and its grassroots network are relentless in ensuring key decision-makers pass laws and policies that benefit people with neuromuscular diseases (NMDs). Together, we lead efforts to increase access to crucial care and services, speed up the development and availability of vital therapies, and better promote inclusion in everyday life.
Education & Information
Life with a neuromuscular disease can be a challenging journey requiring a multitude of resources and support relating to education, careers, accessibility, caregiving, transportation, connecting with community, general disease education, and more. MDA partners with leading medical experts to support ongoing education for clinicians who manage and treat individuals living with neuromuscular disease. Likewise, we offer community education programs focused on helping patients and families navigate critical life transitions, increasing disease understanding, and supporting access to independence.
“Thanks to Muscular Dystrophy Association and people like you I have more hope than ever before!”
—Ethan LyBrand, MDA National Ambassador Alumni